Sometimes the full weight of what this disease has DONE to me hits me like a ton of bricks, and all my optimism and good intentions fly right out of the window.
Any ideas on how to really indulge in a good pity party? I know tomorrow, I'll wake up and it will be a new day and I will find the strength to get back to work. But what do you suggest to help get through a really crappy today?
Abundance
“Both abundance and lack [of abundance] exist simultaneously in our lives, as parallel realities. It is always our conscious choice which secret garden we will tend." - Sarah Ban Breathnach
Tuesday, February 24, 2009
Pity Party
Posted by Shelli at 9:08 PM
Labels: CFS, chronic fatigue, coping, life with CFS, living with CFS, trials
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4 comments:
It's so hard and so unfair isn't it?
From experience the feelings don't go away and all you can do sometimes is sit with them, keep your head down and wait for it to pass.
It's OK to have negative feelings. For me, powerlessness in the face of chronic illness is the hardest one to accept.
Most importantly, try not to beat yourself up about it. Accepting how you feel is not 'giving in' or 'self indulgence'. It is very courageous.
Hang on in there!
I don't know if this will help or not. I'm the mother of a teen with CFS, so I know what I try to do when she crashes.
First, I let her feel puny. We kind of decide that nothing important will be done for the day, so she will maybe look at magazines, watch a good movie, give herself a pedi or manicure.
Of course, she doesn't have 6 kids! ;-)
"That which doesn't kill me will only make me stronger"
((( )))These are hugs sent your way.
I think Jozephine said it pretty clearly...we just have to sit with the feelings and figure out ways to work through them..til they pass. For me that is writing honestly about where I am at. I often tell myself when it gets too dark....this is my illness talking not me. I am not good at holding it in. I also try to distract myself at times with humor, or write an encouraging note to someone else. You have your hands full with still having 6 kids at home.I had 7 kids age 18 to 2 when I got sick..it is very hard...be good to yourself when you can.
Jozephine is so right and I needed to hear what she said here too...accepting how you feel is very courageous...too often I feel guilty when I write something brutally honest on my blog...but it is also a part of me...
Hang in there, love yourself even more on the hard days, and know that you are NOT alone.
Although I try to stay positive most of the time, on the really bad days, I just give into CFS and try to actually "enjoy" a day off. I make a conscious decision not to try to get anything done (a very big stress reliever for me), fix a cup of herbal tea and a snack, and lie on the couch with a big stack of books and magazines. Sometimes, I'll even pop in a movie during the day - something I'd normally never do because it feels like wasting time to me. It really helps to re-watch an old favorite that I know is uplifting (Elizabethtown is one of my all-time favorites). If I'm in really bad shape, I pop in a favorite comedy. Planes, Trains & Automobiles can still make me laugh hysterically and forget all my problems!
Sue
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